M is for Myeloma is a place to chronicle my family's newest 'adventure' living with multiple myeloma to keep family and friends updated and also hopefully help others living with the disease.

Friday, May 6, 2011

Labs all looked good

Went for weekly blood work yesterday and met with the doctor and all my labs looked fine. My electrolytes were all within the normal ranges, and my blood counts were good considering I was 17 days post transplant. I had been a little worried because I had another go around feeling like my heart was pounding Wednesday night. My pulse was only about 105 when I checked it, which is a little high, but it felt as if I had just been out for a run. Palpitations I suppose would be the proper term. It was odd because I had just woken up after having a really vivid intense and not entirely pleasant dream and felt like my heart was pounding. At first I thought it was just a physiological response to the anxiety from the dream, but I got up and took and Ativan and it didn't seem to help with the sensation even over an hour later when I was feeling pretty relaxed. I also find it a little odd that I've been having a lot of very vivid dreams lately, and quite a few bad dreams. A little digging on side effects of medications i'm on revealed nightmares are a side effect of the antibiotic, Levaquin. I had taken it that day only a few hours before bed. It will be interesting to see if the dreams stop since Wednesday was my last prescribed dose. That's all a little beside the point, the real news is the doctor didn't think the palpitations were too concerning. My blood pressure was a little low, but she was pleased that it came up once I drank a powerade. Her recommendation was mostly just to take it easy and do a better job staying hydrated.

I also got a Zometa I infusion and that was pretty uneventful, thankfully. Last time I got one I felt like I got hit by a train the next day. Zometa is essentially the same thing as Reclast, one of the drugs used to treat osteoporosis. It's just a different dose that is more favorable for treating bone damage from myeloma or bone metastases from other cancers.

I'm also trying to figure out how to arrange to send serum back to Arkansas for the biweekly tests they want done there. They gave me a mail-in lab order form and provided all the materials and instructions for me to ship it back, but the doc here said the lab at the cancer center is not set up to centrifuge the tubes as they requested (which I actually find a little hard to believe). My phone nurse told me to try Labcorp since they have worked with them in the past. I called the local Labcorp and told me they won't centrifuge the serum unless they are going to run the tests and that they don't ever release vials to the patient. So waiting to hear back what to do, but I'm definitely slightly annoying by the whole thing. Very frustrating.

In better news, I had the pleasure of enjoying "Muffins with Mom" to celebrate mother's day at the school yesterday morning. We also got their latest school pictures back yesterday. They turned out pretty well. This is twice they've had them done at this school and both times they have amazingly managed to get 3 or 4 really good pictures of the two of them together...I don't think I have EVER been able to even get 1! They also took pictures of Olivia in a cap an gown for graduation....so so cute! I'll post some once I get the cd back with the picture files.

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Wednesday, May 4, 2011

Great to be home!

Flew in Sunday and it feels so good to be home! The kids are excited to have me back. Olivia keeps telling me she loves me, and when we first came in the house Oden sat quietly on my lap for almost a half an hour...and he never sits still!

I'm feeling pretty good, but still get tired very easily. I do miss the security of having my vitals monitored and my labs drawn every day though. I think my electrolytes have been out of whack a little. Monday evening my heart was racing and I hardly slept at all that night. My leg muscles were aching a little too and that and the fast heart rate are both signs of low potassium. It's not too surprising since it had been low last week and I hadn't been so good about taking the supplements for a couple of days. So I restarted those and contacted my local doctor who suggested getting some Pedialyte and trying to up my fluid intake. I'm feeling much better today and tomorrow I go in for labs and to talk to the local doctor. My original Hopkins doctor is helping out with my local care. I wasn't sure if she would since I ditched her for Arkansas, but she agreed so it makes things a little easier...although it might be a little awkward! I really didn't want to have to search for a new doctor though so it's best.

I'm still trying to work out the schedule for the second transplant. I was hoping to go back the first week of June, but they are trying to tell me the 15th because of "the doctor's erratic schedule". We want to move forward as fast as possible since we still have to pay for the rental even when we aren't there. Also, after 90 days on disability my pay is reduced so it will be more of a hardship. Plus I want to be finished up with the intensive portion of treatment that requires me to be down there for weeks at a time before Olivia starts kindergarten in the end of August.

OMG, my baby is starting KINDERGARTEN! We had registration on Monday, so strange to walk into the elementary school! They told us they have 5 kindergarten classes this year. I hope at least a few of the kids she knows from her pre-K class end up in the same class.

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